“A butterfly lights beside us like a sunbeam.
And for a brief moment its
glory and beauty belongs to the world.
But then it flies once again,
and though we wish it could have stayed,
we feel so lucky to have seen it.”

Our Story

Thank you for stopping by. My name is Paige and this is where I share our story of our little boy who underwent the fight of his life against
Hurler’s Syndrome (Mucopolysaccharidosis I).

I am navigating life surviving the loss of our miracle child and finding the courage to continue letting his spirit guide me.

Our Timeline