Hurler's Syndrome Archives - Christopher Joseph

“Just when the caterpillar thought the world was over, it became a butterfly.”

Miracles?

I don’t believe in miracles anymore. Haven’t for a while. I know really that every breath we breathe is a miracle, and every time our eyes open in the morning and we lay our head down on our pillow at night, and we have made...

Posted on September 4, 2014

in Hurler's Syndrome, Motherhood, Our Journey

Angel Christopher’s 10th Birthday

by Paige Migliozzi

Ten years ago today, we had hope. We had everything. We were going to survive. We had put our baby through tortuous days of chemotherapy. We had put poison (chemotherapy) into Christopher’s little body ...

Posted on April 9, 2014

in Christopher, Family, Hurler's Syndrome, Motherhood

Happy Transplant Birthday!!! 9 Years Later

by Paige Migliozzi

Approximately 9 years ago today we had hope. At 8:42pm after two day "zero's" and emergency surgery (yet again!)Christopher received the gift of life. It took 9 minutes to receive his transplant during which time he played and stuck IV lines in his mouth. My...

Posted on April 4, 2014

in Christopher, Family, Hurler's Syndrome, Motherhood

Timeline

by Paige Migliozzi

January 16, 2009 2009! I’m back…… I once said I will never stop this website, and I won’t, it might just take me a little longer some months to update than others! As of today this website has seen 67, 991 hits… I will provide a brief summary...

Posted on January 16, 2009

in Christopher, Family, Hurler's Syndrome, Johns Hopkins, Motherhood, Our Journey