Meet Christopher!

Christopher Joseph Migliozzi was born on April 24th, 2003 at INOVA Fairfax Hospital in Falls Church, Virginia at 9:38am.  Christopher weighed 6lb’s and 12 ounces and was 19-3/4″ long.

Christopher has endured many hospital and doctor’s visits since he was born.  Christopher started off life in the NICU at Fairfax Hospital due to fluid in his lungs, an erratic heartbeat, difficulty breathing and jaundice.  We were able to come home as a family on April 28th.

two babies sitting together

Christopher sunbathing in the NICU. He was known as “Surfer Baby” because he had brown hair with blond streaks.He is now officially a blond.

Since then Christopher has had surgery for an inguinal hernia, multiple ear infections, hearing loss and reflux.

Christopher sunbathing in the NICU. He was known as “Surfer Baby” because he had brown hair with blond streaks.He is now officially a blond.

Since then Christopher has had surgery for an inguinal hernia, multiple ear infections, hearing loss and reflux.

Two weeks old

First Mothers Day, First Day attending Church

On Friday October 10th we had a Barium Swallow test done to see how bad his reflux is.  In doing the x-rays the Radiologist noticed abnormalities on Christopher’s spine.  We were immediately sent to our Pediatrician for a consultation.  An early diagnosis of Hurler’s Syndrome was made.  Blood  was taken the following Monday and sent to  Jefferson Medical Labs in Philadelphia.  On Friday October 17th the results of the test were conclusive,  Christopher was diagnosed with Hurler’s Syndrome (Mucopolysaccharidoses I).

Christopher underwent chemotherapy and a bone marrow transplant in order to save his life, you can read about his journey on these pages. He was inpatient in Johns Hopkins Hospital for almost six straight months. He died on June 11, 2004. In July 2005 he sent down his sister for us to love, and in November 2006, he sent down his brother.

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Christopher Loves:

Elmo
Virginia Tech
Sports Center
Yo Baby Yogurt
Snoopy Sport
Girls!

VT class of 2024

“How you doin’?”